kaylagraham91
6 month post #lungtransplant bronch the other day! Still waiting (not so patiently) for the results! #cysticfibrosis #transplant #blessed
lungtransplant - blessed - cysticfibrosis - transplant -
pinger_genguin - rineaglejr - urban_emoe - mayerarts -
instagram
jojoegaray
Got my itinerary for tomorrow.... #backAtItAgain another full dayโ˜€๏ธ of #LungTransplant tests๐Ÿ“ˆ๐Ÿ“‰#HoustonMethodist ๐Ÿฉ#testing. My Favorite part of all this is #BreakForLunch๐Ÿด๐Ÿ• of courseโ€ผ๏ธeeeek--> Full PFTs ๐Ÿ˜ญwhahhhhโ€ผ๏ธ #pulmonaryFunctionTest ๐Ÿ‘Ž๐Ÿ˜ท๐Ÿ’จI absolutely hate that stupid tank thing ๐Ÿ˜ท๐Ÿ‘ƒ๐Ÿ’จand arterial Gasโ€ผ๏ธ๐Ÿ’‰๐Ÿ™…I'm already tired just thinking about it๐Ÿ‘Ž๐Ÿ’ค but I gotta do what I gotta do..๐Ÿ’ช๐Ÿ’ช#lifeonthetransplantlist ๐Ÿ“โ™ป๏ธ #MyLungsSuckโ€ผ๏ธ#CantBreathe๐Ÿšซ #OxygenNeeded๐Ÿ’จ๐Ÿ˜ท#scleroderma๐Ÿ’Š๐Ÿ’‰ #pulmonaryfibrosis๐Ÿ‘Ž#gastroparesis ๐Ÿ‘Ž
pulmonaryfibrosis - mylungssuck - gastroparesis - pulmonaryfunctiontest - lungtransplant - backatitagain - breakforlunch - testing - houstonmethodist - cantbreathe - oxygenneeded - lifeonthetransplantlist - scleroderma -
mama2chainz : @jojoegaray anytime ;)
kortiz428 : Be strong love ๐Ÿ’™๐Ÿ˜˜
cleaver_penny : LOVE u
jojoegaray : @kortiz428 yes, I am!๐Ÿ’ช ๐Ÿ’‰
jojoegaray : @cleaver_penny โค๏ธโค๏ธ
totallylovelife : @jojoegaray #YouGotThis girl! I hear ya on the PFT..wipes me out too! And that darn arterial gas... #ouch! ๐ŸŒป๐ŸŒธ
margaragamboa : The best for today @jojoegaray HOPE!!!
irishnell : You can do this !
mrsanthonyryerson - cleaver_penny - mstoock - ajpeabody_98 -
instagram
mccunejd_199
I love all of you Cyster/ Fibro and blessings to y'all! #awesome #amazing #loveit #photographer #countryboy #countrylife #justbreathe #cysticfibrosis #cyster #curecf #fightcysticfibrosis #65roses #followme #follow4follow #smile #supportive #staystrong #lungtransplant #proudofmyself #best #shoot #vscocam
cyster - countrylife - proudofmyself - countryboy - cysticfibrosis - staystrong - loveit - awesome - lungtransplant - 65roses - follow4follow - supportive - fightcysticfibrosis - best - shoot - photographer - curecf - amazing - justbreathe - smile - vscocam - followme -
dpirc65 : Love u back buddy..wink @mccunejd_199
onehannahrose - shannongaston - hmb576 - brituhnii -
instagram
mccunejd_199
So, Ive been sober for 6 months now. I decided that I needed stop doing things that aren't good for my body, like drinking, smoking and other things. It's been a struggle but I need to be healthy... I'm having a lung transplant at Cleveland clinic and I had an evaluation done ... just waiting for them to approve it from when I went the hospital. I thought that now was the time! Please respond and or like this post if you're proud of me. Thank you and may God Bless all of you! #awesome #amazing #sober #loveit #photographer #countryboy #countrylife #justbreathe #cysticfibrosis #cyster #curecf #fightcysticfibrosis #65roses #followme #follow4follow #smile #supportive #staystrong #lungtransplant #proudofmyself #best #shoot
cyster - lungtransplant - proudofmyself - countryboy - cysticfibrosis - staystrong - loveit - awesome - countrylife - 65roses - follow4follow - sober - supportive - fightcysticfibrosis - best - shoot - photographer - curecf - amazing - justbreathe - smile - followme -
misskaneylayne : Great job.
queenofthewoods_f250 : Awhh ๐Ÿ˜Š๐Ÿ˜Š @mccunejd_199
mossyoaklove : <3 ur shirttt n uuu
calimama19xx : Thats so awesome for you to ita very hard to do my friend zack who passed in oct with cf had been cleanand sober for almost two and half years to get healthy and take his meds and I was so proud of him and he could still hangout with his friends that drank he was a strong man and one I looked up to alot hes now breathing easy and looking down on all his fellow cfers soldiers keep it up im proud of you!
louy45 - cami_beth_ - shannongaston - saltylife11 -
instagram
_barnes_s
Time has flown by...6 months with a second chance at life. I honestly am beyond grateful with how my life has turned out. I'm thankful for everyone who are there for me before and after I got this amazing gift. Pre-transplant I was at 96 lbs, 18% lung function, and 4 leaters of oxygen. Now 109 lbs, 84% lung function, and 100% room air. #lungtransplant #donatelife #cysticfibrosis #fighter
fighter - donatelife - cysticfibrosis - girlswithink - girlswithtattoos - lungtransplant -
_barnes_s : #girlswithink #girlswithtattoos
rudeboyriley - brittney_faul - the_names_hallie - jeremy_831 -
instagram
fight2breathe
Pain is Temporary. It may last a minute, or an hour, or a day, or a year, but eventually it will subside and something else will take it's place. If I quit, however, it lasts forever xโค๏ธo If you keep Hope alive, it will keep You Alive ll Spent the morning at the Pain Management Clinic. Felt like I had one of the most productive appointments in a long time! I loved my Doctor and he came up with a great plan! Starting with an ultrasound of my back, neck, and shoulders to aid with the injection of trigger point shots. Trigger point injections will temporarily relax my muscles and numb my nerves in order for me to fully benefit from physical therapy. Physical Therapy will hopefully improve my posture and back in hopes of breathing easier and a better quality of life. I am also going to try acupuncture and learning how to slow my heart rate. For my pleurisy pain just a dose of medication that will block my brain from perceiving/recognizing pain. Sooo hopeful this all works! I need some relief more than I tend to complain about. #muscles #pain #nerves #lungs #lungtransplant #health #cysticfibrosis #curecf #fight2breathe
muscles - pain - lungs - cysticfibrosis - lungtransplant - curecf - health - nerves - fight2breathe -
jacjustice : ๐Ÿ’™๐Ÿ’Žโœจ
lifeofaspoonie : Acupuncture is incredible. It has helped me so much, but I dont have cystic fibrosis. Hopes it works as great for you as it did me :)
jbug1128 : @fight2breathe massage therapy has really helped me, but it's pricey. I'd go every two weeks...now since I can't work ..I haven't been able to go. Maybe I can get a referral for something like you are doing. I get some major knots in my shoulders and neck from coughing. I'm trying to better my posture with stretching and yoga too. Keep it up love, we can do this๐Ÿ˜˜๐Ÿ‘๐Ÿ’œ
sheryllgrogan : I love Accupuncture. It has worked wonders for me, I pray the same for you ๐Ÿ’•
hilarina79 : @fight2breathe I highly recommend this, they also make a junior size http://www.amazon.com/gp/aw/d/B000N8YXL6/ref=mp_s_a_1_4?qid=1397721254&sr=8-4&pi=AC_SX110_SY165_QL70
hilarina79 : (it's a back buddy, similar to a theracane for massaging knots urself)
suepizzo : @fight2breathe I've gotten Accupuncture and it's helped a great deal!
jj_totheworld : Have you tried meditation? I found a whole load of good introduction videos on #yogaglo .com when I started yoga this year. If you check out the website, the 1st 2 weeks are free. Not sure if yoga itself is an option for you also, but talk to your doc and see what he says. Personally, I love it.
cody12213 - swimwac_emma - lugo00 - shoshanalana -
instagram
alexxaa22
Hehe.. My friend got a double lung transplant a couple years back.. We were chatting about it the other day #lungtransplant #topnotch #doublelungtransplant
doublelungtransplant - lungtransplant - topnotch -
laurennchristina - rachelleroteliuk - rachelleleanor - theescottward -
instagram
fight2breathe
It's a Great Day to be Alive ll Can't wait to one day see my future beautiful new lungs when they look healthy and clear black in an xray! For now here's a side view ๐ŸŽฅ #xray #lungs #lungtransplant #hospital #lungdisease #cysticfibrosis #curecf #WhosThrowingThePartyWhenWeSeeClear #CantWaitToBreatheEasy
cantwaittobreatheeasy - cysticfibrosis - lungs - hospital - lungtransplant - xray - lungdisease - curecf - whosthrowingthepartywhenweseeclear -
__laurx : I bet it's going to feel great to breath easy! Praying you get your new lungs soon!๐Ÿ™๐Ÿ’•
jono_feltus : Your so positive
lovetobreathe : Lets throw a huge party!! It will be black tie... Pun intended ๐Ÿ˜‰
tlshoemaker519 : I couldn't sleep last night, you were on my mind. Said lots of prayers and positive thoughts for new lungs. Was really hoping they would come last night!
damnitdana : Praying for you!
fight2breathe : @tlshoemaker519 Thank you for thinking of me but let's both try to nap! I was up as well โค๏ธ
fight2breathe : @damnitdana Thank you ๐Ÿ’œ
fight2breathe : @lovetobreathe It's a must! LOVE your idea
ronniecavo - t_boysenberry - kelsbels1985 - stephdeleon07 -
instagram
erintaylor8284
20 months. And its just the beginning. Ive LIVED more in these few months than I did in the 10 years before. Never take the days your given for granted. Live your life and never settle. #donorlove #myhero #alwayswithme #lungtransplant #cysticfibrosis #cfwarrior #lifesaver #donatelife #organdonation
lifesaver - donorlove - cysticfibrosis - myhero - lungtransplant - alwayswithme - cfwarrior - organdonation - donatelife -
bigacheer1 : โค๏ธ
kelley227 : Livin life large Erin...love you!!!
margaragamboa - jenredrum001 - kaitcraw - tracymdavis -
instagram
jo_88xx
Happy 2nd birthday to my brothers lungs! The past year hasn't been an easy one but you've got through it, you are amazing and I am so proud! ๐Ÿ˜˜ #brother #cf #lungtransplant #2yearsold #love #amazing #proudsister #16april2012
love - 2yearsold - lungtransplant - brother - cf - amazing - proudsister - 16april2012 -
ickey28 : Fantastic photo of the both of you. Happy 2nd birthday to his shiny lungs. Lets hope this year is alot better for him x
jo_88xx : @ickey28 thank you! Yes. It looks like it's going to be a good year ๐Ÿ˜ƒ x
ickey28 : Emily says that she has seen your brother a few times as she recognises him. She not sure whether it was at Churchill or Harefield though x
jo_88xx : @ickey28 it's from the Churchill as my brother is at papworth for transplant stuff. X
haleytruax5646 - ickey28 - soosha124 - ezgi_akbyk -
instagram
fitinkednurse
๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™My friend Laura is now on a ventilator awaiting a double lung transplant. She is my age. There is a donation sit set up for her family. Please visit @johnnygoto profile for donation information and just information. If you can not donate, that's ok. But PLEASE pray and repost. We take for granted our health. I'm sitting here able to do this and not think about breathing, while my friend is in a hospital bed with a machine trying to help her breathe. Remember to be grateful for what you have ! http://www.youcaring.com/medical-fundraiser/breathing-for-laura-/165563 #breathingforlaura#mamaneedsnewlungsstat#lungtransplant#donor#organdonor#breathe#lungs#donate#igfitness#igfitfam#fitfam#fitspo#fitspo#fitlife#girlswithtattoos#girlswholift#flexiblediet#family#friends#share
breathe - fitfam - family - xanax - breathingforlaura - lungtransplant - share - sad - mamaneedsnewlungsstat - bodybuilding - fitspo - girlswholift - organdonor - flexiblediet - lungs - igfitfam - pray - friends - prayers - igfitness - fitlife - girlswithtattoos - donor - donate -
kamaricopeland : ๐Ÿ™๐Ÿ™
johnnygoto : @fitinkednurse Thanks Ash. I really appreciate you.
stephlandsman : Oh no!! Thoughts & prayers with them๐Ÿ™๐Ÿ’ž
fitinkednurse : @johnnygoto love you Johnny. Give that beautiful wife of yours some love from me. You take care too. #xanax
kaylanandnora : So sad
fitinkednurse : #pray#prayers#bodybuilding#sad
megsano : Praying!!! ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™
jeffdavidson13 - jlamas1 - _fun_fit_food_ - megsano -
instagram
fight2breathe
Obsessed with my @greentagclothing Clutch! So grateful to Armand, Chris and everyone at GreenTag for making this project possible! My hopes of spreading awareness for Cystic Fibrosis is becoming more and more possible thanks to them and everyone who purchased one of our pouches! GreentagClothing generously donated 100% of the profits to my double-lung transplant fundraiser. Log onto www.fight2breathe.org to check out my blog and support me by donating ๐Ÿ’œ #fight2breathe #greentagclothing #fashion #clutch #lungtransplant #purple #fundraise #donate #cysticfibrosis #curecf #breathe
breathe - fashion - cysticfibrosis - purple - clutch - fundraise - lungtransplant - curecf - donate - greentagclothing - fight2breathe -
greentagclothing : You're a hero to us Caleigh!
gusgus22 : โค๏ธ
gusgus22 : In support of my love , Cory
gusgus22 : @hoop25
patrickcando - funsizedkhan - meg_tini - becky_evezxxxx -
instagram
fight2breathe
If you're not willing to risk it all, then you don't want it bad enough xXx Like a double edge sword I received some good news and bad today. Unfortunately as I have described in recent posts loss of dependence is something I have been struggling with as my disease continues to get more severe and I move closer and closer to hopefully receiving my call for new lungs soon. My days have continued to feel sluggish, my heart rate continues to grow faster compensating for my lack of oxygen and my dizziness is growing more and more often requiring me to not feel safe being active alone; all on supplemental O2. As I haven't been feeling well recently I went to my Cystic Fibrosis clinic to get some answers in hopes of possibly improving. Well today I got a call from my Transplant Team telling me my Lung Allocation Score has increased, moving me up on the list (good news). However, this clearly means my health has declined and become even more end-stage. Please keep my in your prayers that I receive my shiny new lungs soon. Until then I send my donor family all the love one could ever bestow upon another. I am thinking of them always and hoping everyday they spend together be better than the next โค๏ธ #fight2breathe #unos #lungtransplant #cysticfibrosis #curecf #bloodtest #donatelife
curecf - unos - bloodtest - cysticfibrosis - lungtransplant - fight2breathe - donatelife -
mattnasty : It's a lot to take in at first, being on the list. I hope you find peace with it and that you get to feeling better!
life_man : ๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™๐Ÿ™
carrissa_bell : Praying for you! Hopefully they will come soon and keep fighting!
ejunes : Thinking of you!!
fitinkednurse : My prayers to you. I know I don't know you, but my friend is waiting for lungs too! ๐Ÿ™๐Ÿ™
emie_naber : ๐Ÿ™๐Ÿ™ I believe they're on the way. It will give the family price to know their loved one was able to save a life. It's worse when you can't donate... at least in my experience
krbarillari : Praying for you!! Sending lots of love and positive thoughts.
living_lalaland : In my thoughts and prayers everyday. Stay strong even if only mentally. Stay positive. May the call come soon!
thyroiddisease - unash116 - nyorgandonornetwork - cindy_waterhouse -
instagram
fight2breathe
In honor of my fiBros that support #fight2breathe here is my first #mcm who is currently listed for his second double lung transplant, 24 year old Robert Cumming ll I am so very proud of the devoted energy they all fight Cystic Fibrosis with everyday ll Thank you Cfers for your Love and Support xOx #Cystas #Fibros #mancrushmonday #cysticfibrosis #curecf #lungtransplant #unos
mcm - lungtransplant - cysticfibrosis - mancrushmonday - curecf - unos - cystas - fight2breathe - fibros -
hannah_dancee : First like and comment boooom๐Ÿ’ฅ๐Ÿ’ฅ
erin65roses : What?!?! I didn't know that was possible! Thank you for sharing and God bless you both ๐Ÿ˜˜
aaanais : Keep your head up! My dad has had 2 bilateral lung transplants and he's doing so well. I know he will too!
smills1 - shanleigh24 - gabeano - tbeattie1 -
instagram
fight2breathe
โ™ป๏ธRepost from @greentagclothing !! "This is our girl Caleigh! Today at Noon PST, we'll be releasing our first set of women's clutches on our site... ๐Ÿ’ฏ% of the profits go to her organization #fight2breathe! There are only 19 a available So be sure you to show some love! ๐Ÿ’œ" Hope everyone is as excited as I am to get their hands on some official Fight2Breathe gear! Couldn't be more thankful to everyone at GreenTag Clothing! Their hard work and dedication to our project shows through the quality of this clutch! Armand and Chris are full of love and passion for what they do! Fight2Breathe thanks you all for supporting the CF community and for helping my path to survival with shiny new lungs! #greentag #clutch #donate #lungtransplant #cysticfibrosis #curecf #recycle
cysticfibrosis - clutch - lungtransplant - curecf - greentag - recycle - donate - fight2breathe -
mars2685 : Just bought two! Soooooo excited!!! Cyster support. ๐Ÿ˜˜
asiaaisz : Consider mine bought!! ๐Ÿ‘๐Ÿ˜ @fight2breathe Keep fighting on Caleigh and all the #Cystas #Fibros out there!! Nothing but ๐Ÿ’œ and support ๐Ÿ‘Œ #breathe #newlungs
cindy_waterhouse : Super cute
michaelmiguelmitchellmichelle : Sooo rad
nikkie37 : I'm so glad I got mine!!! ๐Ÿ’œ
sher_s : Sold out! :(...
bo_dean : Let us know if they offer more- there are lots of us who would still love to buy one! ๐Ÿ˜Š
hilarina79 : Cute!!
sokelseywaslike - they_r_my_everything_n_life - shoshanalana - j_haber -
instagram
fight2breathe
Always Believe in Yourself, and the rest will fall into place. Have Confidence in your own Abilities, Work Hard, and there is Nothing you Cannot Accomplish. ๐Ÿ’œ Switched inhaled antibiotics from Tobi to Cayston to try to kick this cough I've been constantly fighting! #Cayston (or Inhaled Aztreonam) is the first FDA approved inhaled antibiotic in more than a decade. It is used in Cystic Fibrosis patients who have Pseudomonas Aeruginosa to improve respiratory symptoms ll Hopefully Cayston combined with the oral antibiotic my team prescribed will improve my symptoms soon! Cannot wait to have a good nights sleep again without waking up coughing every few minutes xOx Good night everyone! SleepTight! #fight2breathe #cysticfibrosis #lungtransplant #antibiotic #NebBeforeBed #goodnight #curecf
cayston - antibiotic - cysticfibrosis - lungtransplant - curecf - goodnight - nebbeforebed - fight2breathe -
sheryllgrogan : Sweat dreams ๐Ÿ’•
fight2breathe : @tmaxxrunner haha totally does! ๐Ÿ‘พ
tmaxxrunner : Lol hope ur doing well! Some #NorCalLove sent ur way
joshuajax89 : @fight2breathe I feel your pain, Cyster.
pegson : @fight2breathe what oral antibiotic are you combining with it
carmencrous : I've got the same one! Haha but sometimes it makes me choke ๐Ÿ™Š. What do you use in your nebs currently?x good luck, you're an inspiration- but you probably hear that all to often.x embrace it
carmencrous : Ohh I use Colistin, I've been resistant for TOBI found out last year. Good luck!
cindy_waterhouse : Hope it kicks that coughs butt
aahshuks - babyfacebone - andrea_shelton - marti_rh_cf -
instagram
aaanais
April is Donate Life month! My family is eternally grateful to the donors of my dad's 2 pairs of lungs, his doctors and surgeons, ICU and transplant nurses, and everyone who has cared about us since our crazy journey started in 2007. If my constant posts can inspire at least one person to sign up to be a donor, I will know that our journey has not been in vain.
thankgod - pulmonaryfibrosis - donatelife - family - lungtransplant - vscophile - april - vscogrid - vscocam - donatelifetexas - vsco - organdonation - bilaterallungtransplant - organdonor -
crystal_0406 : I've been a registered donor for years. I just hope I can help someone like your dad when the time comes because everyone deserves to live a healthy and happy life.
aaanais : @crystal_0406 I'm so happy to hear that! Thank you โค๏ธ๐Ÿ™
vicwillsin : ๐Ÿ™๐Ÿ‘
nowimgold : Beautiful people. โค๏ธโค๏ธโค๏ธโค๏ธ
martejr123 : ๐Ÿ‘Œ๐Ÿ™๐Ÿ‘
pfforg : This is great. May we #regram?
rachieinwonderland : Love!!
aaanais : @pfforg of course!
_dexm_ - mushroomstew - kms11770 - quither -
instagram
fight2breathe
While Accomplishing your Dreams, Don't forget to Enjoy Life too ll Feeling Amazing surrounded by the people I love at the Giants Game! What a perfect day off from the hospital! Giants Win it 5 to 4!! ...Guess I've still got my Lucky Charm! ๐Ÿ˜‰ #GoGiants #sfgiants #fight2breathe #cysticfibrosis #curecf #ilovesf #baseball #lungtransplant
gogiants - cysticfibrosis - lungtransplant - ilovesf - curecf - baseball - sfgiants - fight2breathe -
wreece123 : I glad you have a good time with you Giants love. U
heyitsjuliee : I WAS GOING TO GO TODAY THEN MY FRIEND BAILED ON ME AND TOOK SOMEONE ELSE. man, I could have actually met you
fight2breathe : @heyitsjuliee Awww mannn!!!
minderella01 : @fight2breathe I am going to be in Cali all week!!!!! Let me know if you need anything!!!
sanregretweddings - lizethhaber1 - schwalenberg - cindy_waterhouse -
instagram
fight2breathe
April is National Donor Month!!! ll California has set the national record for the number of people registered as organ, eye, and tissue donors!!! About 11 million Californians are on the state-authorized donor registry, DonateLifeCalifornia.org and the CA Department of Motor Vehicles; meaning 1 in 3 adults are registered! This gives about 21,000 people or 20% of the national list of people who await organs hope of living by receiving a transplant. Children and Adults of all ages may receive transplants. There are about 122, 263 people currently waiting for an organ and another name is added to the national transplant waiting list every 12 minutes. More than 6,500 people die waiting every year in the US. One donor can save up to 8 lives. Please take a moment and sign up to be a donor at DonateLifeCalifornia.org/fighting-to-breathe or your states national donor list. This may not only help me one day but will help someone. That someone may be your friend, your family member or even yourself โค๏ธ #organdonation #donor #unos #recycleyourself #lungtransplant #cysticfibrosis #curecf #fight2breathe #california
unos - cysticfibrosis - lungtransplant - curecf - recycleyourself - california - donor - organdonation - fight2breathe -
emperry4395 : Wow awesome pic what was this taken with?!! @fight2breathe ps I'm an organ donor โค๏ธ
pat__saunders : Everyone should automatically be on the list, you should have to opt-out if you don't want to donate your organs... Imagine how embarrassing it would be standing in that line to announce how selfish you are haha!
kdegs21 : @pat__saunders that is an awesome way to put it! I can't imagine being so selfish.. what do I need my organs for when I'm dead? There are soooo many people that can benefit
gordanierh : My niece was killed three years ago on this coming 4th of July, she was 11. We were able to donate 6 of her organs which saved 5 peoples lives. Our mom was on the lung transplant list 13 years ago but wasn't strong enough to make the wait. She was 54. You would have been an amazing inspiration to our mom, as you are to myself in so many ways. I pray for continued strength and match sent your way.
mandierudd : great post ๐Ÿ’œ
lizethhaber1 - naughtycecchi - lilschmittyy - mamabiggs -
instagram
ashzav
2 years ago today I was sitting in my hospital room waiting for my heart to come from Georgia. So many wonderful things have happened since then, thank you Simmons family ๐Ÿ’š @irishnell #wenderful #happyorgans #hearttransplant #hearttransplantsurvivor #lungtransplant #lungtransplantsurvivor #donatelife #angel #2years #thankful #hero #picoftheday
hearttransplantsurvivor - hero - donatelife - angel - wenderful - lungtransplant - lungtransplantsurvivor - hearttransplant - thankful - happyorgans - picoftheday - 2years -
indianaopo : You are a wonderful volunteer, @ashzav
dianagrimes : Luv u Ashley! Xoxo
reemajou : Yay!โค๏ธ
ashzav : You too mama Di ๐Ÿ˜˜
ashzav : @indianaopo I do what I can, thank you!
ashzav : @reemajou You know how it goes! ๐Ÿ’š๐Ÿ’š
reemajou - 3schultzgirls - leslief22 - aechelbarger -
instagram
irishnell
Two years post double lung transplant and going strong ! #lungtransplant #lungtransplantlife #lungtransplantsurgery #lungtransplantsurvivor #lifeisgood ๐Ÿ‘๐ŸŽ‰
lifeisgood - lungtransplant - lungtransplantsurvivor - lungtransplantlife - lungtransplantsurgery -
amynguyen21 : Better than ever!!
jojoegaray : ๐Ÿ’™๐Ÿ’š
maryelizabeth28 : You look beautiful cuz!! Love u!!!
aaanais : God bless!โค๏ธ
margaragamboa : โค๏ธโค๏ธโค๏ธโค๏ธโค๏ธ๐Ÿ˜˜
jojoegaray - maryelizabeth28 - maureenbrooks - amborthwick -
instagram
the_waitinglist
FROM ANGEL BOSTON, WAITING FOR A LUNG TRANSPLANT, SINCE 7/02/13 @anangelfish 4/11/14 #childhood I got my beads of courage yesterday!!! Each bead represents a part of my journey. I have 3 heart beads which means how many times I was transferred to PICU at the hospital. The rainbow represents each time I went to therapy. I have many more and I can't wait to get more. #endthewait #thewaitinglist #lungtransplant #donatelife #organdonation #mystory #photoproject
mystory - donatelife - lungtransplant - photoproject - thewaitinglist - endthewait - organdonation - childhood -
aisboston - mid_jrz - jmod83 -
instagram
suzib66
Getting my blue and green on for Donate Life month! #BlueandGreen2014 #donatelife #lungtransplant #thewaitinglist #whatareyouwaitingfor #scleroderma #pulmonaryhypertension #pulmonaryfibrosis
pulmonaryfibrosis - donatelife - whatareyouwaitingfor - scleroderma - lungtransplant - thewaitinglist - blueandgreen2014 - pulmonaryhypertension -
pfforg : We need to get you a green/blue #pulmonaryfibrosis #awareness wristband! Please send your name and address to jennifer@pulmonaryfibrosis.org & weโ€™ll get that out to you!
suzib66 : Thank you @pfforg!
jojoegaray - pfforg - aisboston - madxansi -
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jojoegaray
My daughter @jayrey511 her best friend @saranbiskup are holding a T-Shirt fundraiser for me!๐Ÿ‘•๐Ÿ’ฐthis is to help me with my #DoubleLungTransplantโ™ป๏ธ๐Ÿ’Š๐Ÿ’‰ expenses๐Ÿ’ฐ๐Ÿ’ธ๐Ÿ’ต, which includes pre-transplant, post-transplant care & feeding tube โžฟnourishment & medications.๐Ÿ’Š๐Ÿ’‰If anyone would like to purchase one or would like more info please text โœจSara at 979-240-6692 or text โœจJessica at 979-318-9801 Adult sizes $15 and child sizes $10. +shipping ๐Ÿ“ฆ๐Ÿ“ฌif needed. Thanksโ€ผ๏ธ๐Ÿ’›๐Ÿ‘ #scleroderma โ™ฟ๏ธ #pulmonaryfibrosis #gastroparesis #KeepCalm&GetJoAnnNewLungs#NewLungs #lungtransplant #help #tealRibbon #fundraiser #justBreathe
pulmonaryfibrosis - tealribbon - help - scleroderma - lungtransplant - keepcalm - newlungs - fundraiser - justbreathe - gastroparesis - doublelungtransplant -
jojoegaray : @chillyfrog thanks so much. I'm not sure what all the details are of where and who they ordered or will be ordering from...it was a complete surprise to me that they set this up to help me. I appreciate it so much!!! :)
mctd_support : Do you have a go fund me acct?
jojoegaray : @mctd_support no but I do have a You Caring account.
mctd_support : Do you mind sharing?
jojoegaray : @mctd_support I've posted a few pics before of my youcaring.com fundraiser.
mctd_support : I'll check them out! ๐Ÿ’›
mama2chainz : @jojoegaray I want one! How can I order?
jojoegaray : @mama2chainz contact Sara. Her phone number is in the post. Please text her, she is usually is school all day, but she will get back to you. Thanks so much!!!!๐Ÿ’š
kimberlyravin - mctd_support - its_your_country_girl - mrsanthonyryerson -
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the_waitinglist
FROM GUEST EDITOR ANGEL BOSTON, WAITING FOR A LUNG TRANSPLANT, SINCE 7/02/13 @anangelfish 4/11/14 Medicine time. Yuck. It tastes bad. People don't understand that just because its air it doesn't mean it doesn't have a bad taste or smell. And now my doctor wants to add another nebulizer. It takes too much time. I have better things to do. #endthewait #thewaitinglist #lungtransplant #bonemarrowtransplant #wechildrenalsogetsick #mystory #photoproject #childhood #organdonation #donatelife
mystory - donatelife - wechildrenalsogetsick - lungtransplant - photoproject - thewaitinglist - endthewait - organdonation - childhood - bonemarrowtransplant -
prosers : I'm sorry @anangelfish.
chesebemi3 : Hang in there pretty girl @anangelfish
aisboston : Haha. She says it tastes so bad, she won't even put it in her mouth. ๐Ÿ˜
davidylee - aisboston - shortneyt - thewaitinglistdoc -
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the_waitinglist
Meet Debbie Jones Crane (and her husband Tom) of El Dorado Hills, CA. Debbie received a double lung transplant on May 24, 2011. "I was on oxygen 24/7. I had an unit in the home, a compressor. So my whole world was as long as the oxygen cord would let me go. Or as long as a tank of oxygen would let me go. I had about 40% lung capacity. If I went anywhere, I had probably โ€“ I could carry two tanks on my cart, and then I would have about five or six tanks in the trunk. It was like driving around with a little bomb in my car. To be restricted like that I had never experienced in my life. And to think the only reason I can breathe is because this oxygen is coming to me. Itโ€™d be like you trying to just run through your day sucking through one of those coffee stirrers. And that is all the oxygen you can get in. No matter what you do. It is frightening. You spend all of your energy just trying to breathe. I was not feeling well for a long time and the doctors kept saying it was asthma. Try this, try that. And then in November, no December of 2010, it was like falling off a cliff. Everything just accelerated so rapidly. This time I knew that I wasnโ€™t going to be able to beat it this disease. There was no more medications, there was no more try a little harder, breathe a little harder, suck it up a little bit more. So I went to go have some tests done and I had gone to work that day, like any other day, and the doctor called and said, โ€˜You have to make a choice. You have either less than six months to live, or you are going to have to have a double lung transplant.โ€™ I mean, what do you do with that? Giving up has never been in my world. There are so many things that were on the road ahead of me. If I just gave up, I would never, never see those things come to fruition. The love of my husband, the love of my family, the love of my friends I think when you have those things circling in your life, you would never just lay there and go, โ€˜I just canโ€™t do this anymore.โ€™ There is so much to live for even if it is the crappiest day on Earth. There is just so much to live for.โ€ โ€” Debbie Jones Crane. (Photo by @davidylee for @the_waitinglist)
giftoflife - whatareyouwaitingfor - endthewaitinglist - sierradonorservices - lungtransplant - thewaitinglist - nationaldonatelifemonth - organdonation - donatelife -
the_waitinglist : At 1:52 EST there are 122,231 people on the organ transplant waiting list. The DMV is no longer the only place to sign up as an organ donor. States now offer an online registration process: www.donatelife.net/register-now
the_waitinglist : #endthewaitinglist #whatareyouwaitingfor #donatelife #thewaitinglist #sierradonorservices #giftoflife #nationaldonatelifemonth #organdonation #lungtransplant
the_waitinglist : Thank you @sierradonorsvcs for sponsoring this portrait series and for making the project a reality. If you live in the Sacramento area and are interested in being an ambassador for organ donation, please contact Deanna Santana at Sierra Donor Services: dsantana@dcids.org
sarah000028 : So great to see someone on the other side doing so well- I can only hope for the same!! #suchaninspiration #thewaitinglist
marksb77 - maribelb - klkillips - brittany6920 -
instagram
sierradonorsvcs
Meet Debbie Jones Crane (and her husband Tom) of El Dorado Hills, CA. Debbie received a double lung transplant on May 24, 2011. "I was on oxygen 24/7. I had an unit in the home, a compressor. So my whole world was as long as the oxygen cord would let me go. Or as long as a tank of oxygen would let me go. I had about 40% lung capacity. If I went anywhere, I had probably โ€“ I could carry two tanks on my cart, and then I would have about five or six tanks in the trunk. It was like driving around with a little bomb in my car. To be restricted like that I had never experienced in my life. And to think the only reason I can breathe is because this oxygen is coming to me. Itโ€™d be like you trying to just run through your day sucking through one of those coffee stirrers. And that is all the oxygen you can get in. No matter what you do. It is frightening. You spend all of your energy just trying to breathe. I was not feeling well for a long time and the doctors kept saying it was asthma. Try this, try that. And then in November, no December of 2010, it was like falling off a cliff. Everything just accelerated so rapidly. This time I knew that I wasnโ€™t going to be able to beat it this disease. There was no more medications, there was no more try a little harder, breathe a little harder, suck it up a little bit more. So I went to go have some tests done and I had gone to work that day, like any other day, and the doctor called and said, โ€˜You have to make a choice. You have either less than six months to live, or you are going to have to have a double lung transplant.โ€™ I mean, what do you do with that? Giving up has never been in my world. There are so many things that were on the road ahead of me. If I just gave up, I would never, never see those things come to fruition. The love of my husband, the love of my family, the love of my friends I think when you have those things circling in your life, you would never just lay there and go, โ€˜I just canโ€™t do this anymore.โ€™ There is so much to live for even if it is the crappiest day on Earth. There is just so much to live for.โ€ โ€” Debbie Jones Crane. (Photo by @davidylee for @the_waitinglist)
donatelife - whatareyouwaitingfor - endthewaitinglist - sierradonorservices - lungtransplant - thewaitinglist - nationaldonatelifemonth - organdonation - giftoflife -
sierradonorsvcs : #endthewaitinglist #whatareyouwaitingfor #donatelife #thewaitinglist #sierradonorservices #organdonation #lungtransplant #giftoflife #nationaldonatelifemonth
the_waitinglist : Thank you @sierradonorsvcs for sponsoring this portrait series and for making the project a reality. If you live in the Sacramento area and are interested in being an ambassador for organ donation, please contact Deanna Santana at Sierra Donor Services: dsantana@dcids.org
sierradonorsvcs : At 10:57AM PST there are 122,231 people on the organ transplant waiting list. The DMV is no longer the only place to sign up as an organ donor. States now offer an online registration process: www.donatelife.net/register-now
timelesstreasuresforever - thewaitinglistdoc - donors1 - mis_ronnie -
instagram
sinitalela
Repost for the fam! #SiaosiVeimau is in need of a #lungtransplant. Some of you may be familiar with his work. For those of you who aren't, this man has made it his life's work to encourage healthy living as the creator of and #personaltrainer at #Rawmana. Please help to return him to health by donating at www.gofundme.com/TeamSiaosi. #polyfitness #teamPOLY #Tongan #RawmanaFitness #Sandiego #GoFundMe #cysticFibrosis #CollapsedLung #TeamSiaosi #Fitnesstrainer #PleaseHelp #donateNow
teampoly - siaosiveimau - polyfitness - cysticfibrosis - collapsedlung - lungtransplant - teamsiaosi - donatenow - rawmanafitness - rawmana - tongan - sandiego - personaltrainer - gofundme - pleasehelp - silverbackgame - fitnesstrainer -
_ceelaa : @lovi_sime look ๐Ÿ˜ณ๐Ÿ˜“
sinitalela : #silverbackgame
tongaimavunipola - limatu - vaofelemea - pilawhoa7 -
instagram
fight2breathe
My Cysta. She knows just where I Dream to go, remembers where I've been. Accepts me just the way I am, and treats me like a Friend ๐Ÿ‘ฏ Thank you so much to my love @alyssalarosa for making me smile tonight and reminding me that every hard day is worth the fight for new lungs! xOx #cystas #lungtransplant #cysticfibrosis #curecf #fight2breathe
curecf - lungtransplant - fight2breathe - cysticfibrosis - cystas -
laurynhaber : Scandalous Shirt Rat!
alyssalarosa : So glad you enjoyed. Love you Cys
swimwac_emma - dileo_mar - xaemama - reanza6510 -
instagram
the_waitinglist
From Guest Editor Sara Boston, mom of Angel Boston, waiting for a double lung and bone marrow transplants since 7/02/13 @aisboston and @anangelfish 4/10/14 Angel received her starter set of beads from Beads of Courage today! This program is for children who are experiencing a serious illness and allows them to collect different beads that commemorates their courage facing different procedures. They have specific beads for organ transplants and bone marrow transplants, which is cool since she'll be undergoing both. Will post pictures of her strand when she feels well enough to string them. #donatelife #lungtransplant #bonemarrowtransplant #beadsofcourage #endthewait #thewaitinglist #nationaldonatelifemonth #scid #whatareyouwaitingfor
donatelife - whatareyouwaitingfor - lungtransplant - thewaitinglist - beadsofcourage - endthewait - nationaldonatelifemonth - scid - bonemarrowtransplant -
davidylee : @anangelfish @aisboston -- For tomorrow's portrait series post, I will be introducing Debbie Jones Crane who received a double lung transplant on May 24, 2011. While we were talking, I asked her if she could say anything to Angel, if I could put her on the phone, what would she say to Angel: "I would just hug her over the phone and tell her it is so very hard, but so very worth it when you receive the call. It is very, very difficult. You just can't give up hope. You just have to know that if this is what is meant to be in your path, you'll embrace it and you'll thrive and life will continue. And you will give those lessons back." Sara, thank you for letting Angel share her story with @the_waitinglist. And Angel, thank you for doing such an amazing job. I look fwd to meeting you two one day. DYL
chronicallykayla13 - sarah___showalter - allie425 - brittany6920 -
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fight2breathe
Dream and Dream Big ๐Ÿ”ณ Granting permission to use my removed Lung Tissue for a study of lung submucosal glands ll Submusocal Glands are small glands just beneath the inner surface of the lung. The purpose of this research is to determine if fluid secreted by airway submusocal glands is altered in patients with lung disease xXx After my lungs are removed some of the lung tissue will be used for research experiments helping Cystic Fibrosis' future development. The researchers will place the discarded airway tissue scraps in a cold salt solution and will then use them for physiological studies. Meaning studies of how cells and organs work. The researchers hope to obtain data that may be important in the study of Cystic Fibrosis and other lung diseases. www.fight2breathe.org #fight2breathe #cysticfibrosis #curecf #lungtransplant #research #organsearch #cellresearch #stanford #physiologicalstudies
physiologicalstudies - cysticfibrosis - stanford - lungtransplant - research - curecf - cellresearch - organsearch - knowledgeispower - fight2breathe -
fight2breathe : So happy to be helping my future and the future of my Cystas and fiBros!
smills1 : Thankful for you and your educational posts- keep teaching inspiring and fighting!
fight2breathe : @smills1 ๐Ÿ’œ #KnowledgeIsPower
emperry4395 : Awesome! Thank you. And keep fighting please! ๐Ÿ’œ๐ŸŒน
kimbusacca : Youre perfect. Thank you and stay strong ! What youre doing is beautiful in every way
strittgibbs : Thank you for helping future generations of CFers - my daughter included. You.Are.Strong!
lizethhaber1 : So proud of you boo
sokelseywaslike - ncruzrn - lbiggers - fightlikem -
instagram
fight2breathe
We think we need so many useless things, when all we Really need is Time To Breathe x๐Ÿ’œo Received my Official Letter of Listing! ll After all the hard work I have put into my health, the sacrifices I have made and continue to make socially to benefit my well-being, the daily 60+ pills, the many hours of breathing treatments and cpt, the physical pain of coughing, and the emotional heartache my family feels every time I go absent for weeks at a time during hospitalization, every needle drawing blood and every hand hit my back in effort of loosening the mucus secretions in my lungs are all worth it reading the words, "This letter is to confirm your status as an active candidate on the Stanford Hospital and Clinics Heart-Lung and Lung Transplant List. You were listed on the United Network for Organ Sharing National Transplant List for Double Lung Transplant effective April 3, 2014."
boyermom : Yay
tracetorecreate : Congratulations!!! I hope your wait time is short and your new lungs are pink, healthy and love to take deep breaths. Stay strong and we're rooting for you!!!๐Ÿ’›๐Ÿ’›๐Ÿ’›
erin65roses : I'm so happy for you!!!! You deserve this โค keep up the hard work your so close โค
tbeattie1 : Yeaaa yeaaaa
ronniecavo : @fight2breathe well done!!! ๐Ÿ˜œ๐Ÿ‘โœŒ๏ธ
hilarina79 : Yayyy :) :)
s_mat23 : Congratulations! I don't know you personally, but your positive attitude in your situation is so inspiring :)
patty8491 : ๐Ÿ‘๐Ÿ’œ
dileo_mar - cf_shoutout - patty8491 - jmfuentes_14 -
instagram
orlsw
Happy lungiversary to me! 2yrs today how time flies :) love my boyfriend for making it special ๐Ÿ’œ #lungiversary #lungtransplant #transplant #lungs #cf #cysticfibrosis #anniversary #love #chocolatecake #yumy #chocolatefudgecake #organdonation #organdonorssavelives
love - cysticfibrosis - lungs - lungiversary - lungtransplant - chocolatefudgecake - cf - anniversary - organdonorssavelives - yumy - chocolatecake - organdonation - transplant -
kateandmeg : Super cute โค๏ธโค๏ธโค๏ธ
kateandmeg : Happy LungDay โค๏ธโค๏ธโค๏ธ
aoifemckie : Diabetes alert
scarletfro : So thrilled for you !
ginge321 : Congratulations have a great day, hope u have many more๐Ÿ˜„๐Ÿ˜„
aaanais : Congratulations!!!!!โค๏ธโค๏ธโค๏ธ
hatobeads - murkitty - donateliferunwalk - danielle__m -
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